International Rett Syndrome Foundation
Accelerating Research. Empowering Families.
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Latest posts
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Neurogene Presents New Data at ESGCT Congress that Reinforce Key Differentiators of NGN-401 Gene Therapy for Rett Syndrome
The post Neurogene Presents New Data at ESGCT Congress that Reinforce Key Differentiators of NGN-401 Gene Therapy for Rett Syndrome appeared first on International Rett Syndrome Foundation .
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Marvel Biosciences Advances MB-204 Toward First-in Human Testing, Selects CMAX as Phase I Clinical Trial Site
The post Marvel Biosciences Advances MB-204 Toward First-in Human Testing, Selects CMAX as Phase I Clinical Trial Site appeared first on International Rett Syndrome Foundation .
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The Rett Research Tool Belt: Biomarkers & Long-Term Tracking
What if researchers could detect changes in Rett before they’re visible, better understand how the condition may progress, and learn more about individual responses to treatment? Biomarkers and long-term tracking are helping move Rett research toward that future. The post The…
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Marvel Biosciences Signs Letter of Intent with Novatech for Phase 1 Trial of MB-204 and Provides Corporate Update
The post Marvel Biosciences Signs Letter of Intent with Novatech for Phase 1 Trial of MB-204 and Provides Corporate Update appeared first on International Rett Syndrome Foundation .
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Acadia Pharmaceuticals Announces 2027-28 Rett Sibling Scholarship (Community Letter)
The post Acadia Pharmaceuticals Announces 2027-28 Rett Sibling Scholarship (Community Letter) appeared first on International Rett Syndrome Foundation .
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Acadia Pharmaceuticals Announces Allowance of U.S. Patent Covering Weight-Banded Dosing of Trofinetide, extending U.S. patent protections to March 2041
The post Acadia Pharmaceuticals Announces Allowance of U.S. Patent Covering Weight-Banded Dosing of Trofinetide, extending U.S. patent protections to March 2041 appeared first on International Rett Syndrome Foundation .
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Minoryx Announces European Approval of Leriglitazone for cALD and Provides Update on Ongoing TREE Study
The post Minoryx Announces European Approval of Leriglitazone for cALD and Provides Update on Ongoing TREE Study appeared first on International Rett Syndrome Foundation .
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International Rett Syndrome Foundation and Citizen Health Partner to Bring AI Teammate Ari to the Rett Syndrome Community
A practical new tool helps families organize records, track symptoms, prepare for appointments, and manage more of the work around Rett care. The post International Rett Syndrome Foundation and Citizen Health Partner to Bring AI Teammate Ari to the Rett Syndrome Community…
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UCB presents data at EEC 2026 highlighting continued leadership in epilepsy and developmental and epileptic encephalopathies
The post UCB presents data at EEC 2026 highlighting continued leadership in epilepsy and developmental and epileptic encephalopathies appeared first on International Rett Syndrome Foundation .
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Where Science, Collaboration and Community Come Together: Recapping the 2026 IRSF Scientific Meeting
From June 29th through July 1st, more than 300 members of the global Rett syndrome research community gathered in Prior Lake, Minnesota, for three days of science, conversation and shared determination to move the field forward. The post Where Science, Collaboration and…
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Anavex Reports Third Fiscal Quarter 2026 Results and Provides Rett Syndrome Program Update
The post Anavex Reports Third Fiscal Quarter 2026 Results and Provides Rett Syndrome Program Update appeared first on International Rett Syndrome Foundation .
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Males Have Rett Syndrome Too. IRSF is Launching a $1 Million Fund to Make Sure Rett Research Includes Them.
The MR. fund targets barriers keeping males with Rett from timely diagnosis, appropriate care, clinical trial inclusion, and access to treatments. The post Males Have Rett Syndrome Too. IRSF is Launching a $1 Million Fund to Make Sure Rett Research Includes Them. appeared first…