Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News
The Web's Daily Resource for Sickle Cell Disease News
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Latest posts
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Living with sickle cell has taught us how to make really good lemonade
I tell my children that we are a family that makes really good lemonade. Meaning, when life gives us something difficult or sour, we have an uncanny ability to turn it into something positive or sweet. I believe that is mostly due to the skills we have acquired while battling…
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Assessing risk and being prepared ahead of traveling by air with sickle cell
Recently, I’ve been receiving international professional opportunities, which have made me think about a question I’ve avoided for years: What would I do if an opportunity I’ve always dreamed about required me to travel abroad by airplane? What happens when one of your greatest…
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New sickle cell gene therapy shows promise in early mouse study
A novel gene therapy for sickle cell disease (SCD), designed to modify blood stem cells without the need to remove and transplant them back into patients, showed proof-of-concept results in humanized mice, a study found. “Comprehensive [non-human primate] studies will be…
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Guest Voice: My biggest wish as a sickle cell warrior is to be seen
My name is Whitney Smith. I am 41 years old, an aspiring voice-over performer, roller coaster enthusiast, foodie, and animation lover. My hobbies include bike riding, Jet Skiing, traveling, playing board and video games, and collecting vintage toys. I live my life to the…
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My port-a-cath wasn’t the long-term relationship I’d hoped for
If you’ve been following my journey for a while, you’ll know that in 2022, I had a port-a-cath fitted to support my blood exchange program. I have sickle cell disease and notoriously tiny veins, so after years of difficult cannulations, multiple attempts to gain access, and the…
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My online sickle cell community reminds me that I am not alone
For the past five years, I have looked forward to turning 40. When my birthday finally arrived on Oct. 18, I expected a quiet day at home. I planned to rest before my big birthday party this weekend, perhaps with a few visits from family and friends. Little did I know that my…
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Children with sickle cell and low vitamin D may face more pain crises
Vitamin D deficiency in children and adolescents with sickle cell disease (SCD) was consistently associated with worse clinical and laboratory outcomes, including more frequent pain crises and hospitalizations, a review of published studies found. The 12 studies evaluated also…
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Is sickle cell disease a blessing or a curse?
Is sickle cell disease (SCD) a blessing or a curse? I came across this question on social media a few days ago. As I prepare to turn 40, my answer, shaped by four decades of living with SCD, is that, to me, it is neither. It has become part of my purpose. The way I […] The post…
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Taking the time to figure out your loved ones’ vaso-occlusive pain triggers
I believe one of the most important things you can do, either as a sickle cell disease caregiver or a person with the disease, is to learn what can trigger a vaso-occlusive pain crisis. It can be nearly anything, both internal or external. Two of the most common triggers that…
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Blocking key protein opens potential new path for SCD treatment
Blocking the activity of a protein called BACH2 may be a valuable strategy for treating sickle cell disease (SCD) and related blood disorders, a study shows. Researchers found that suppressing BACH2 could increase the production of fetal hemoglobin (HbF). Increasing HbF levels…