Cure HHT
Finding a cure
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Latest posts
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Cure HHT on Facebook
Dear Cure HHT community, If you’ve looked for Cure HHT on Facebook this week and couldn’t find us, we want to explain what happened—and help you reconnect with us. Earlier this week, our original public Facebook Page was compromised, and our staff’s administrative access was…
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Cure HHT Wins Inaugural Prix Galien Patient First Award in Honor of Michael J. Fox
Recognition in the Patient-Led Initiatives category honors an approach to progress built around patients, partnerships, and shared purpose. Cure HHT has won the inaugural Prix Galien Patient First Award in Honor of Michael J. Fox in the Patient-Led Initiatives category,…
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Terry’s Story: Your gift turns stories into science and science toward a cure
The hardest moment hereditary hemorrhagic telangiectasia (HHT) has given me happened in a recovery room, while my youngest daughter was still coming out of anesthesia. She had just undergone a procedure to treat pulmonary AVMs in her lungs, and we hoped it would be enough. Then…
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Honoring the People Who Built the HHT Field—and Those Building What Comes Next | Awards
At every scientific conference, there are moments when we look forward: toward the next question, the next clinical trial, the next discovery that could change what it means to live with HHT. But progress also asks us to look back. To recognize the people who asked the questions…
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RougeTx Launches with HHT as Lead Therapeutic Program
RougeTx, a new biotechnology company focused on vascular disease, has launched with $58 million in Series A financing to advance RTX-001, an investigational treatment being developed for hereditary hemorrhagic telangiectasia (HHT).
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Tectonic Reports Early Safety Data for TX2100: What It Means for HHT Research
The hereditary hemorrhagic telangiectasia (HHT) treatment landscape continues to grow. On September 29, Tectonic Therapeutic announced early clinical results for TX2100, an investigational therapy being developed for hereditary hemorrhagic telangiectasia (HHT). The company also…
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AVMs: Know the Signs
An arteriovenous malformation (AVM) is a tangle where arteries connect straight to veins, skipping the capillaries that normally slow the blood down. Many cause no symptoms at all and turn up on a scan ordered for something else.
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From Stories to Science.
Every person living with HHT has a story. Your gift helps turn those stories into evidence—and evidence into better care.
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Advancing Clinical Research in HHT: Introducing the Harmony-HHT Clinical Trial.
Tuesday, October 27, 2026 · 12:00 PM ET | Register now!
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HHT Connect, the global registry
Run by Cure HHT · Open worldwide · From home | The first global patient registry for HHT. Free, voluntary, and open to anyone with HHT anywhere in the world.