Family Heart Foundation
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Latest posts
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Ambassador of the Month — Kathy T.
We are excited to announce that each month, we will be honoring a different Family Heart Ambassador as our featured Ambassador of the Month! We are grateful for the continued work and dedication of these exceptional volunteers, and we are excited to share their personal story as…
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New Family Heart Publication Characterizes the Contemporary Rate of Lp(a) Testing
The Family Heart Foundation is dedicated to improving the lives of individuals with inherited lipid disorders. One way we do this is through our research that is intended to characterize patterns and identify gaps in care – to encourage action. A data analysis published in the…
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Family Heart in the Community: August 2026 Highlights
Throughout August, the Family Heart Foundation was busy connecting with healthcare professionals, community leaders, and families across the country, raising awareness and sharing resources on familial hypercholesterolemia (FH) and high lipoprotein(a) (Lp(a)). From national…
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Ambassador of the Month — Alina W.
We are excited to announce that each month, we will be honoring a different Family Heart Ambassador as our featured Ambassador of the Month! We are grateful for the continued work and dedication of these exceptional volunteers, and we are excited to share their personal story as…
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From Diagnosis to Advocacy: Gabriella’s Story
My name is Gabriella. I was diagnosed with familial hypercholesterolemia (FH) when I was 8 years old. At that age, I did not fully understand what my diagnosis meant or how it could impact my life. As I have grown older, I have been fortunate to become more educated about FH and…
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The Question That Changed Everything: Ashley’s Family Story
My husband, Josh, and I have two beautiful children, Gabriella, is 17, and Gavin is 11. We are lucky to have families who are close—the kind of close where grandparents become part of the everyday rhythm of raising children, where holidays mean crowded tables, and where family…
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Family Heart Foundation Releases New Lp(a) Policy Paper
Specific Recommendations Included for Clinicians, Health Systems, Payers, Policy Makers, and Individuals living with high Lp(a) to reduce the Burden of Lp(a)-Related Cardiovascular Disease Despite the neutral results in the Lp(a)HORIZON clinical trial, lipoprotein(a) remains an…
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Shining A Light On Apheresis Awareness Day
National Apheresis Awareness Day, September 16th, is a day to recognize a unique, potentially life-saving medical procedure that often works quietly behind the scenes. For many in our Family Heart Foundation community, lipoprotein apheresis isn't just a treatment. It's a…
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Family Heart Foundation Research Demonstrates How the FIND Lp(a)® Machine Learning Model Enables Targeted Lp(a) Screening
Published in Journal of the American College of Cardiology's JACC: Advances, the findings show that individuals identified by the FIND Lp(a) model were more than twice as likely to have high Lp(a). The Family Heart Foundation has announced the publication of a new study in the…
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From Family History to Early Diagnosis: Kylie’s Story
Hello friends! My name is Kylie Olson, and I was diagnosed with familial hypercholesterolemia (FH) and elevated lipoprotein(a) when I was 5 years old. It was no easy task to get to that diagnosis, let alone where I am today in my journey. My story doesn’t begin with me, but…
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Family Heart Statement on the Lp(a)HORIZON Trial
It is disappointing news for our greater community that the Lp(a)HORIZON trial did not meet its primary endpoint for reducing specified cardiovascular events. However, scientific research is iterative and we remain hopeful. Clinical trials require the effort and expertise of…